February 25

I feel like if I don’t write something soon, everyone will forget I’m here. Including me. Life seems full of holes at the moment, a bit ragged, and rather dull. Slumberous times, but not refreshing. I do things I don’t enjoy. I do things I usually enjoy but don’t enjoy now. I think enjoyment might require more energy than I have at the moment. It’s very difficult to let discomfort simply be, when it feels like a garrote wrapped around my neck. Perhaps I should stop trying to reassure myself. Why do I try to reassure myself? I’m very unconvincing. I live my life trying to pretend that I am not deeply afraid of: being alone, losing the people I love, being friendless, entering depression and never exiting, passing my mental problems along to my children, having no money, having no faith, living with Firecracker’s disease, looking for meaning and finding nothing, trying to create meaning and being stymied. Being me, just me, as in this is all there is – me anxious, floundering. There is no better me, no me with improved synapses and joie de vivre, no me who is more productive and less defective.

When I was younger, I used to think about being a mistake, that I was shoved into this world with some sort of ontological defect that prevented me from holding the world loosely rather than facing it stricken, as if it were coming after me with claws bared. More people than I realized feel this way, which isn’t much comfort, really. We are always busy leaping out of the way of the industrious, the ambitious, and the determined who think us weak and tiresome.

Some days my thoughts are like the sound of footsteps receding down an empty hallway.

Gray in several ways

It’s the right sort of weather to be melancholy, and I am. I am definitely at low tide. You can go pick up the dead fish and seashells, if you like. This morning I finally filled out a questionnaire I’ve been putting off. As part of my reconstructive surgery I have a silicone implant, which the manufacturer is following quite closely to make sure no one gets sick. Of course, this reminds me that I have an implant. Not that it’s all that easy to forget, but I definitely play an evasive game with it. Of course I’m grateful for the vast strides in plastic surgery and would much rather this than say, being dead, but I have my moments when I feel a bit sorry for myself. Or maybe it’s just the residue of the experience. When I visited my brother in the hospital recently, I was uncomfortably reminded of my many visits – the circular drive in front of the main entrance, the color of the carpet and walls, the smell of the soap. . Actually, I get a little quaky just thinking about it now. Dear Husband would say that I never really dealt with it. That could be right, or maybe I just never knew what it would mean to deal with it. I was pretty fraggin happy that I didn’t have to have chemo or radiation at the same time that I was astounded that you could need a mastectomy for grade 0 cancer and someone with a grade 2 could get away with a lumpectomy. I had no lump – just widespread tissue change. On the scale of catastrophe, I thought it was pretty small. Even on the scale of familial catastrophe it seems small next to Firecracker’s preterm birth, her Tuberous Sclerosis, her brain surgery and Dear Husband’s chronic illness. Yes, a walk in the park compared to Firecracker having her skull sawed off, electrodes stuck in her brain and her skull stuck back on temporarily with wires snaking out for a week of videotaping and testing only to find out that it was a big friggin waste of time. I wish I hadn’t thought of that.

I’m also looking at my gray hair. I feel ambivalent about it. Is it really so dowdy as people seem to think. It looks sort of pretty to me. I’m ticked off that the world and pretty much everyone I know covers their gray. Dear Husband is definitely in favor of hair dye, which I usually do. I often feel like I would just like to be gray, dammit. Let it be. But then part of me is holding on to youth, because I still feel as gauche and unformed as a 20 year old. There’s a woman at my church who has beautiful silver hair. She also has an impeccable figure and good bones. She makes gray hair look like something you could flaunt saucily. I don’t have sauce, unfortunately.

I googled “going gray gracefully.” Gracefully means that you have your hairstylist do lowlights and highlights and generally fuss about so that your gray grows in prettily. In the past 10 years I’ve had my hair dyed professionally perhaps twice. Not a big fan of dropping $100 at a salon. Dear Husband thinks I lack some female gene because I don’t labor over makeup and my hair and nails. Seriously, screw it. The only time I was interested in such stuff I wore black nail polish, blue lipstick and dyed my hair pink. THAT’S fun. Manicures, eyebrow waxing – give me the money and I’ll go buy a book, thank you very much.

Well, this all reminds me that I need to get my anti-depressant refilled, play with my kids more and give Dear Husband more kisses.

Why This Weekend Sucks

I never look forward to Memorial Day weekends. I always feel futile and ill at ease. It may be because my birthday always falls around that weekend. Dear Husband comes from a family that goes all out to celebrate birthdays. I remember one party when I was little, and no doubt presents when I was growing up. But, and it's kind of dreadful to admit because it sounds so emo, but I've never felt it was something to celebrate. I spent the better part of my life thinking that anyone glad to be here had to be nuts, and that my entrance was definitely not something I was happy about. It seemed so much like some sort of glitch, that a divine flunky read the charts wrong and I was really supposed to be back in the undifferentiated whatever that souls come from before they enter bodies.

Even now, when I can usually grab on to some perspective, and am medicated beyond belief, I feel more and more dark-minded as my birthday approaches, and I tense every time someone wishes me a happy birthday, as if I were taking something fraudulently. And I'm angry that I can't shake it, that I can't look on life as an amazing gift instead of my personal version of Kafka's Penal Colony. (Which, BTW, if you haven't read it you should really put in on your list. Criminals have their crimes written on their bodies with needles, and the director of the camp finally puts himself in the machine because the criminals all experience a revelation. And then they die. Yep, I love me some Kafka.)

I'm sitting at my desk at work. The office closed early, but I can't bring myself to leave. When I leave the apparatus of the weekend begins, all the cogs and wheels grind away, and I have to deal with sniping children, laundry, empty time, chaos, cooking, groceries, feeling lost, feeling futile. And I will be one year older, but no wiser.

The path of my life is strewn with cowpats from the devil's own satanic herd.

I wonder if I’m doing okay? Sometimes I’m not sure. Sometimes I’m not sure I’m that in touch with myself. Maybe I could send myself an email. My thoughts have been soggy. When we passed the anniversary marker for Firecracker’s surgery, and when I remember it, my stomach clenches its fist and looks balefully at me. What were you thinking? To put your child through that? And for what? Nothing!

I feel death wafting around me. Perhaps I will die this year. I don’t want to die. I’m really opposed to it. My nephew, my friend. My friend. Is it easier to meet death deliberately instead of waiting for it to snare you? Why did she feel that dying was better than living? I miss her. And what about me? I think of estrogen. Perhaps I should have gone on tomoxifin. Maybe estrogen is the enemy. I’m overweight, so I’m even producing more of it. I’m practically swimming in it. Perhaps it’s wreaking havoc even as I sit here so indecisive. Perhaps I’ll die from indecisiveness. And then there’s Dear Husband. Whenever he has a flair up I wish I could peek into his bladder and make sure all the cells are behaving, no proliferation. Everyone’s health panics me. What is going on that I cannot see? Death and his demons, where are the creeping?

It’s amazing what plastic surgeons can do with reconstruction, it really is. But my new breast will always be a…a… construction. It is better than cancer, but it is still this alien sculpture perching on my chest. How I wish they could have done the TRAM. I’m still sad about that. I’ve never intended to have another child, but the knowledge that I could never nurse one if I did makes me cry. Isn’t that weird?

I’ve come to the conclusion that I am not doing what I was intended to do. The problem is that I have no idea what I was intended to do. You know, that idea that God has a plan with a place for everything and everything in its place. Do I even believe that? What do I believe? How can I believe? When I think of death, it seems the most preposterous suggestion that we would go somewhere after. It pretty much looks like a blank wall: bye bye. But there are these stories, this scripture that says otherwise. I find it hard to swallow.

I find it hard to chew on most things Christian these days. The claims, the glib prayers, the churchy stuff, the inspirational books, the enthusiasm, the dull dull tumbling of words. The bright shininess and maudlin spectacle of it all. The music. Oh god the awful sameness and bouncy bouncy of it. Sometimes it seems that if I jumped in the river it would come up to my ankles, so shallow the water is full of silt.

And then there are these longings that I don’t believe in: to home school my children, or at least to be a SAHM there when school is over, when the bus drops them off. The mom who can visit the class with the cupcakes and a story to read, who may actually someday meet the other mothers whose children my daughters spend more time with than with me. It seems so out of balance, but who am I kidding? My salary is essential and always will be, even after we pay off the cars and the student loan. Besides, I can’t organize my own time. I’m useless at it. How can I organize anyone else’s?

There, I’ve written it out of me for now. Tomorrow Firecracker is having a birthday party. I’m afraid no one will come. That happened one year, or nearly. Only one child showed up. I’ve tried calling, and the moms either don’t speak English or act as if they are reluctant to admit that the live in this universe, the universe with the invitation, my child, their child, and their common classroom.

More on my adventures in dyspepsia later. The title of this post, btw, is from Black Adder, and it gave me the day's first laugh. If you aren't familiar with Black Adder, you need to correct that deficiency right away before it becomes a way of life.

Anxiety, dread, and depression

It’s one of those days when my mood suddenly turns on a dime. I was going along, bored but getting things done and feeling generally positive, when I suddenly found myself sliding down the mountain of self doubt. All my choices seem suspect. All my talents have been buried, misused, or never existed at all. Every event seems like a hurdle, from the smallest to the largest. It’s just a mood, I tell myself. It will pass. But really these sorts of moods suck the joy out of everything and replace it with anxiety and dread. I have enough anxiety and dread on the good days without more taking root.

Tiddly Pom

I feel antsy today, unable to settle and concentrate. Nothing that should hold my attention does. I would so much rather be reading a book. Or napping. Or alternating napping and reading. Instead I am staring at emails, staring at my to-do list, working in fits and starts.

I hate being bored. My brain craves stimulation. I want to talk, I want to read, I want to listen to people tell me their stories. I want to bob along in the flow of ideas. Instead I’m plashing in the shallow here, just me and the dead frogs.

I look out my window. It’s hot and humid out there. The sky is dull with moisture. The clouds look sluggish. It’s the right kind of day to be bored. The heat inhibits enthusiasm, movement, vigor. In this weather, everything is itchy, including my mood.

I just stepped outside to see if I could scrounge some change from my car (in the hopes that a coke will bully me into productivity). Do you recall in Harry Potter the image of the Dementers sucking out the souls of their victims? Yeah.

God, I wonder what it would be like to have a work ethic.

A Partial Accounting of My Life

1. The toilet sprang a leak.
2. One shower is leaking through the grab bar into the garage.
3. I don't know anything about plants and I have a half acre of land.
4. The switch has tripped and I feel like I'm dragging around.
5. I need to find a new psychiatrist to manage my medications.
6. My medications aren't cutting it.
7. I love the sunlight in the kitchen and the view from our windows.
8. What do brown recluse spiders look like, anyway?
9. What are all these odd little beetles that cling to my front door at night?
10. I have to recaulk the tub.
11. The plumber told us that was a waste of time and we should just pull of the tiles, bleach everything and redo the tiles.
12. I am not that handy.
13. Did I mention that my medications aren't cutting it?
14. Firecracker can't get to sleep and she wakes me up several times during the night.
15. I need a haircut.
16. I hate cooking.
17. I like being fed.
18. I have watched more Spongebob Squarepants than I ever thought possible.
19. I would be happy if I never saw Hannah Montana again. Or the Jonas Brothers.
20. I love my Mat Kearney CD.
21. Dear Husband surprises me with his enthusiastic embrace of home improvement.
22. Dear Husband is getting sick.
22. Oh, and my medications aren't cutting it.