Showing posts with label illness. Show all posts
Showing posts with label illness. Show all posts

Thursday, June 30, 2011

Perturbation

I am experiencing waves of anxiety, the kind that make me dither over every decision, however small. Everything seems to take such monumental effort, and my will is weak and whiney. I can't even stand to hear myself think.

I want to sink my claws into everyone I love and make sure we all stay safe. There’s too much illness and uncertainty. Someone very dear at my workplace has advanced cancer. Dear Husband has some mysterious digestive ailment and the testing for that is before us. Blood work apparently revealed significant inflammation, and startling words such as “Crohn’s Disease” have been mentioned. More blood work and an endoscopy next week. Meanwhile everything he eats seems to hurt him. And what can I do about it? Damn all.

I myself wish I could just give up eating altogether. I’m taking acid blockers, but I still often feel queasy. And for some reason, despite the fact that I’ve found gluten free bread that pretty much tastes like bread, it disturbs me. I can never finish it. It makes me think of trying to eat mushrooms. I can, sort of, if they are in a stew or over steak, but I can’t shake the knowledge that they are fungus. That’s so gross. Why would I want to eat fungus? And somehow this gluten free bread evokes the same hesitation. It’s ersatz bread. I KNOW what it truly is. I feel like I took the red pill and I can never unknow its true properties.

Firecracker is, well, Firecracker. Everything goes well and then something strange comes out of left field, like her extreme reaction to ant and mosquito bites. I feel like I need to wrap her up just to get to the car. And by extreme, well you should have seen the enormous blisters the ants created. She looked like she had bubonic plague. Tomorrow it’s a trip to the orthodontist. That’s sounds so minor, just the usual stuff kids go through. Except everything the orthodontist says makes my stomach knot. Her palate is too small, so she will have to have an expander, which basically forces the soft bone apart (ye gads, it sounds so awful), but it needs to be done quite soon to avoid an overbite. Her teeth are all over the place. She almost looks like she has two rows, that's how crowded they are. She also has gum hyperplasia (too much gum tissue), probably from years of seizure meds, so the orthodontist tells us she will need periodontal surgery to remove some of the excess tissue. Yep, there's that knot tightening. Firecracker does not deal well with pain and discomfort. She used to, but I think she depleted all her reserves. Now needles provoke temper tantrums and crying jags, and she focuses on every scrape and cut, examining it every few minutes, asking the same questions over and over about why and when and how it will get better.

DramaQueen is, as always, healthy, thank you God, but she has my eyes, poor girl. She has to have a physical soon and the thought of having blood drawn panics her. Seems when I was a kid I was getting shots all the time, and I don't even remember the first time I had blood drawn. It just was what it was, a moment of ouch and over. Somehow DramaQueen is all, well, dramatic about it. 

I have more doctor appointments I need to schedule, the endless rounds of keeping on top of my health issues. I feel like a ticking time bomb. Somewhere a rogue cell is waiting. I feel old. I don’t get enough sleep. I don’t get enough any exercise. Mortality is giving me the beady eye. And all I want to do is lie down.

Wednesday, July 21, 2010

Need to Get Away

I haven’t felt much like blogging because:

  1. My dad is in the hospital. He’s been there for weeks, battling pneumonia that just won’t go away. He’s on oxygen and forbidden from moving around (he doesn’t have enough breath for any exertion at all). We went to visit him last weekend. He was happy to see the girls, of course, but he slept a lot and the mask made communication nearly impossible.
  2. Meanwhile, we are to go on vacation this Saturday for a week. I’m worried that he will take a turn for the worst while I’m away. Or before, for that matter. The girls have been looking forward to this for months. Last year I had to abort a trip to LA because my nephew died. Dear Husband and the girls will go without me, and that will be a great disappointment to them. And of course I want a vacation, too. But I want to be there if my dad needs me.
  3. I have to have an excisional biopsy. What the stereotactic biopsy revealed is benign, but it can’t be left and watched because it will inevitably transform into cancerous cells. So, another excisional biopsy it is. And there’s always the possibility that the tissue recovered in this will show ductal carcinoma, in which case I will have to seriously consider another mastectomy. Given my history I don’t think I would feel safe with a lumpectomy or something less radical. Sigh. In any case, I will be revisiting tomoxifen. The oncologist wasn’t all that keen on it, because it offers either no or slim benefits for ductal carcinoma (studies are mixed), which has a low recurrence. But if it does recur… Double sigh. On the positive, I guess I would have a matching and gravity resistant set.
  4. Summer. I hate living in a sauna. I loathe being outdoors for even a few minutes while the hot wet blanket of air closes around me. I hate the sticky vegetation and persistent wasps. I hate garbage ripening in the heat. I hate the sickly smell of cut grass. I hate climbing into my car and gasping while I wait for the air conditioner to kick in. Summer in Georgia is utterly disgusting.

So I’m a bit draggy these days. Did I mention that school starts August 9? Preparations for that are breathing down my neck.

I really want that vacation, even though vacationing with kids is more like engaging in a strategic exercise than actually relaxing.