Sunday, February 10, 2008

9:44 am Sunday

Firecracker is watching Mickey Mouse and nibbling at her breakfast. She is better today than I've seen her. She spent some time on Cartoon Network playing games. She's complaining of itching and trying to pull at the gauze turban and the fat sheet of wiring that's coming out. The room is decorated by may colorful posters from friends. We must have the brightest room here. And yesterday her nurses brought her a present and a balloon, and some cake and ice cream. That was sooo sweet. A friend from church brought her a valentine webkinz frog, which Firecracker has dubbed "Love." Next door is a family whose little boy is having the same procedure. He's ready to get up and MOVE, poor fellow, but he's stuck in the bed with the video monitor. They brought over a little stuffed rhino for Abby, which was awfully nice. We shared stories of bewilderment and struggles with diagnoses and mis-diagnoses. So many doctors know so little that parents end up having to educate them. Thankfully there are resources for that, but not all doctors are receptive or will take the time to do the reading and calling around to TS clinics and the like.

Dear Husband is bringing me coffee again. Last night the sweetie went out and got me Chinese food. Heaven. Cause the cafeteria food leaves something to be desired. It's not awful, but it has a reconstituted feel about it. The French toast and pancakes are a bit rubbery, and the sandwiches look like something I would put together at home when I'm running out of ingredients. The best thing are the potato chips--they have salt and vinegar and lime with black pepper.

Firecracker is missing her sister. She came by yesterday with a birthday present, bought with her own money. DramaQueen is such a lovely girl (most of the time). She got Firecracker a Batmobil. We certainly aren't hurting for amusements. The little hospital library has a nice bunch of books and videos for kids, and there are a lot of games available. I even found some books for myself. Of course, mostly I'm just tired, collecting various aches and pains. Thankfully a friend brought over an air mattress, which greatly improved my sleep last night. I can't seem to get quite enough, though.

No seizures yet.

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