It looks as if they may not be able to go forward with surgery to remove the tuber. The neurologist came in and told me that they fear the seizure focus is too close to the motor area. I didn't get all the ins and outs of this. The neurosurgeon is going to come tomorrow and show us all the charts and explain it in detail. Part of the problem is that Firecracker has had only one seizure since we came in. That's just weird. But that one seizure gave them pause because of the way it spread. They won't remove a tuber if they don't get any return--decrease in seizures. So, here we are. Poor Firecracker is irritated beyond belief by this turban, and she's starting to get a bit restless. Dear Husband is beyond sad. I'm sad, too, although I tend to be resigned to these sorts of setbacks. I'd rather they called it off than damage her motor strip. But we were so hopeful that removing the tuber would help get rid of the seizures and thus give her a boost in development.
But, the neurologist did mention that there are other surgical methods besides resectioning that can be performed. Whether or not the neurosurgeon sees any benefit to any of them remains to be seen.